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Ehlers Danlos Syndrome Teen Support Group

Being a teenager is hard enough. When you’re a teenager diagnosed with a rare disease, like Ehlers Danlos Syndrome (EDS), the difficulties of living can feel more challenging and incredibly lonely. You’re balancing the daily stressors of simply being an adolescent alongside the fear and frustration of EDS-specific challenges like severe chronic pain, fatigue, brain fog, subluxations...and so much more. It’s exhausting.

But hey, that’s why we built this group. Our Colorado EDS Teen Support Group is a weekly therapy group tailored to high school teens diagnosed with (or pursuing a diagnosis of) Ehlers Danlos Syndrome or hypermobility spectrum disorder who are ready to explore their relationship with their diagnosis and gain a community of life-long peers, just like them.

A GROUP FOR COLORADO TEENS WITH EDS TO EXPLORE THEIR DISABILITY AND GAIN A LIFE-LONG COMMUNITY OF PEERS

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This group meets on Fridays at 5:00 pm

$40 per group, scholarships available
Medicaid accepted

Together, This Colorado EDS Teen Support Group Helps Teens:


✔ Develop coping skills to support them in dealing with everyday challenges of having a disability

✔ Foster a life-long community of other people that share their lived experiences

✔ Discover how to be proud of who they are and the diagnosis’ that are now part of their life

✔ Learn how to advocate for their needs in a variety of environments, including in school, at the doctor's, and with other important relationships

This group is for teens who:

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Are diagnosed (or seeking diagnosis) of any one of the 13 types of EDS or hypermobility spectrum disorder

Have felt challenged by their EDS and related medical complications

Feel alone or a lack of confidence because of their EDS

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Want a greater understanding of how EDS can and will impact their lives

Are looking for a community of EDSers their own age

Need a brave space to process their feelings around having EDS and being disabled

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Your Teen Group Facilitator

LENA H. MCCAIN | MA, LPC.0017723

This Colorado teen group meets online via a secure video platform and is led by Lena McCain, our Founder and Clinical Director. Lena has her Masters in Clinical Mental Health: Mindfulness-Based Transpersonal Counseling Psychology from Naropa University. From the Southwest to the Great Lakes to right here, she has worked with teens of all different backgrounds from all over the world for over 12 years. Diagnosed with hEDS and POTs at 14 years old, Lena has both witnessed AND experienced the unique opportunities as well as challenges that a medical condition like Ehlers Danlos Syndrome brings with it.

Together, Lena and this teen group will create a brave and safer space to explore disability as a part of life as well as foster a life-long community with peers who share similar lived experiences.

Frequently Asked Questions

Interested? Let us know by filling out the form below!